My name is Sloane and I am four years old. When I was 5 weeks old, I was diagnosed with a rare genetic disorder called Aicardi syndrome. I have significant physical and developmental disabilities but the worst part of my syndrome is the seizures. I have 7 to 10 seizures every day, typically lasting 5 to 10 minutes, but sometimes my seizures last for 30 minutes or even longer. Because of my seizures, I'm not developing like most kids. I can't walk or talk and I am fed through a tube in my stomach.
Although I do have many limitations, I am a lot like other kids my age. I love to be loved. My favourite thing of all is to be cuddled. My 6 year old sisters, Avery and Kinleigh, are the best at snuggling and cuddling me - sometimes they are a little too good at it! I love listening to music, classical is my favourite. I also love swimming and have a hot tub that I like to relax in after a stressful day.
My home away from home is Grandview Children’s Centre. I have been a Grandview Kid since I was 7 months old. The staff at Grandview are wonderful and treat me like a princess. I use many of the services at Grandview, such as occupational therapy, physiotherapy, and speech-language therapy, as well as Grandview's new Ophthalmology Clinic.
I have been lucky enough to be one of the kids who has benefited from this amazing facility, but there are many more kids who are waiting for service from Grandview because of the space limitations. The staff at Grandview could do so much more for me and other kids with special needs if they just had the appropriate space to do what they do best.
Please help me by supporting the Our Grandview campaign that my parents, Neil and Stephanie Pasher, helped launch along with other moms and dads of Grandview Kids.
Our community needs a bigger and better Grandview to help with the special needs of our very special children.
Healthy communities raise healthy children.
Please help me to improve the health of our community by supporting Our Grandview. Add your voice of support today.
- written by Sloane's Dad, Neil Pasher